Stigma Disabilitas di Mata Orang Tua Anak Difabel di Yogyakarta
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Abstract
Stigma is an inseparable part of social life. Stigma shows diversity in representing viewpoints, values, standards, and the power to make social categorizations. One of the causes of stigma is physical and non-physical differences such as those experienced by people with disabilities. Parents of children with disabilities also feel the impact of stigma related to disability as an associated group. The research uses a psycho-social approach with a descriptive-qualitative method to explore perspectives, experiences, responses, and de-stigmatization strategies. The research subjects are parents who have children with disabilities in Yogyakarta. The study found several forms and characteristics of stigma experienced by parents and various reactions and efforts of parents to fight stigmatization.
[Stigma merupakan bagian tak terpisahkan dari kehidupan bermasyarakat. Stigma menunjukkan adanya diversitas dalam merepresentasikan sudut pandang, nilai, standar, dan kuasa untuk membuat kategorisasi sosial. Salah satu penyebab stigma adalah menonjolnya perbedaan fisik maupun non-fisik seperti yang dialami para penyandang disabilitas. Dampak stigma terkait disabilitas turut dirasakan orang tua anak difabel sebagai kelompok yang saling terasosiasi. Penelitian menggunakan pendekatan psiko-sosial, dengan metode deskriptif-kualitatif yang bertujuan untuk menggali perspektif, pengalaman, respons, dan strategi destigmatisasi. Subjek penelitian adalah para orang tua yang memiliki anak difabel di kota Yogyakarta. Penelitian menemukan beberapa bentuk dan sifat stigma yang dialami para orang tua dan berbagai reaksi dan upaya para orang tua untuk melawan stigmatisasi.]
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References
Angermeyer, M. C., Schulze, B., & Dietrich, S. (2003). Courtesy Stigma: A Focus Group Study of Relatives of Schizophrenia Patients. Social Psychiatry and Psychiatric Epidemiology, 38(10), 593–602. https://doi.org/10.1007/s00127-003-0680-x
Barbarin, O. A. (1986). Family Experience of Stigma in Childhood Cancer. Dalam The Dilemma of Difference: A Multidisciplinary View of Stigma. Plenum Press. https://www.springer.com/gp/book/9781468475708
Becker, G., & Arnold, R. (1986). Stigma as a Social and Cultural Construct. Dalam The Dilemma of Difference: A Multidisciplinary View of Stigma. Plenum Press. https://www.springer.com/gp/book/9781468475708
Beuscher, L., & Beck, C. (2008). A literature Review of Spirituality in Coping with Early-Stage Alzheimer’s Disease. Journal of clinical nursing, 17(5A), 88–97. https://doi.org/10.1111/j.1365-2702.2007.02126.x
Brown, L. C. (Ed.). (2013). Stigma: An Enigma Demystified. Dalam The Disability Studies Reader (4 ed.). Routledge.
Causey, K., & Duran-Aydintug, C. (1998). Tendency to Stigmatize Lesbian Mothers in Custody Cases. Journal of Divorce & Remarriage, 28(1–2), 1–2.
Colker, R. (2015). Blaming Mothers: A Disability Perspective. Panel VI: The Limits and Future of Antidiscrimination Law, 95, 1205.
Corrigan, P. W., Markowitz, F. E., & Watson, A. C. (2004). Structural Levels of Mental Illness Stigma and Discrimination. Schizophrenia Bulletin, 30(3), 481–491. https://doi.org/10.1093/oxfordjournals.schbul.a007096
Cresswell, J. W., & Fawaid, A. (2017). Research Design Pendekatan Kualitatif Kuantitatif, dan Campuran. Pustaka Pelajar.
Crocker, J., Major, B., & Steele, C. (1998). Social Stigma. Dalam The Handbook of Social Psychology. McGraw-Hill; Distributed exclusively by Oxford University Press.
Darwis, A. (2014). Metode Penelitian Pendidikan Islam: Pengembangan Ilmu Berparadigma Islami. Rajagrafindo Persada.
Druss, B. G., Bradford, D. W., Rosenheck, R. A., Radford, M. J., & Krumholz, H. M. (2000). Mental Disorder and Use of Cardiovascular Procedures After Myocardial Infarction. JAMA, 283(4), 506–511. https://doi.org/10.1001/jama.283.4.506
Fine, M., & Asch, A. (1988). Disability Beyond Stigma: Social Interaction, Discrimination, and Activism. Journal of Social Issues, 44(1), 3–21. https://doi.org/10.1111/j.1540-4560.1988.tb02045.x
Folkman, S., Lazarus, R. S., Gruen, R. J., & DeLongis, A. (1986). Appraisal, Coping, Health Status, and Psychological Symptoms. Journal of Personality and Social Psychology, 50(3), 571–579. https://doi.org/10.1037//0022-3514.50.3.571
Franklin, B. (1752). Letter to James Parker. Dalam The Importance of Gaining and Preserving The Friendship of the Indians to The British Interest Considered. E Cave. http://name.umdl.umich.edu/N05302.0001.001
Goffman, E. (1986). Stigma: Notes on the Management of Spoiled Identity. Prentice-Hall.
Hinshaw, S. P. (2007). The Mark of Shame: Stigma of Mental Illness and an Agenda for Change. Dalam The Mark of Shame. Oxford University Press. https://www.oxfordclinicalpsych.com/view/10.1093/med:psych/9780199730926.001.0001/med-9780199730926
Howard, M. S., & Medway, F. J. (2004). Adolescents’ Attachment and Coping with Stress. Psychology in the Schools, 41(3), 391–402. https://doi.org/10.1002/pits.10167
Jones, E. E. (1984). Social Stigma: The Psychology of Marked Relationships. W.H. Freeman.
Link, B. G., & Phelan, J. C. (2001). Conceptualizing Stigma. Annual Review of Sociology, 27(1), 363–385. https://doi.org/10.1146/annurev.soc.27.1.363
Major, B., & O’Brien, L. (2005). The Social Psychology of Stigma. Annual review of psychology, 56, 393–421. https://doi.org/10.1146/annurev.psych.56.091103.070137
Morone, J. A. (1997). Enemies of the People: The Moral Dimension to Public Health. Journal of Health Politics, Policy and Law, 22(4), 993–1020. https://doi.org/10.1215/03616878-22-4-993
Mullen, B., Salas, E., & Driskell, J. E. (1989). Salience, Motivation, and Artifact as Contributions to the Relation Between Participation Rate and Leadership. Journal of Experimental Social Psychology Journal of Experimental Social Psychology, 25(6), 545–559.
Oliver, M. (2009). Understanding Disability: From Theory to Practice (2nd ed. 2009 edition). Red Globe Press.
Ostman, M., & Kjellin, L. (2002). Stigma by Association: Psychological Factors in Relatives of People with Mental Illness. The British Journal of Psychiatry: The Journal of Mental Science, 181, 494–498. https://doi.org/10.1192/bjp.181.6.494
Perkins, T. S., Holburn, S., Deaux, K., Flory, M. J., & Vietze, P. M. (2002). Children of Mothers with Intellectual Disability: Stigma, Mother–Child Relationship and Self-Esteem. Journal of Applied Research in Intellectual Disabilities, 15(4), 297–313. https://doi.org/10.1046/j.1468-3148.2002.00140.x
Pescosolido, B. A., & Martin, J. K. (2015). The Stigma Complex. Annual Review of Sociology, 41(1), 87–116. https://doi.org/10.1146/annurev-soc-071312-145702
Pescosolido, B. A., Martin, J. K., Lang, A., & Olafsdottir, S. (2008). Rethinking theoretical approaches to stigma: A Framework Integrating Normative Influences on Stigma (FINIS). Social Science & Medicine (1982), 67(3), 431–440. https://doi.org/10.1016/j.socscimed.2008.03.018
Pilgrim, D., & McCranie, A. (2013). Recovery and Mental Health: A Critical Sociological Account (2013th edition). Red Globe Press.
Pryor, J., Reeder, G., & Monroe, A. (2011). The Infection of Bad Company: Stigma by Association. Journal of personality and social psychology, 102, 224–241. https://doi.org/10.1037/a0026270
Quinn, D. M., & Chaudoir, S. R. (2009). Living with a Concealable Stigmatized Identity: The Impact of Anticipated Stigma, Centrality, Salience, and Cultural Stigma on Psychological Distress and Health. Journal of personality and social psychology, 97(4), 634–651. https://doi.org/10.1037/a0015815
Ritsher, J. B., Otilingam, P. G., & Grajales, M. (2003). Internalized stigma of mental illness: Psychometric properties of a new measure. Psychiatry Research, 121(1), 31–49. https://doi.org/10.1016/j.psychres.2003.08.008
Sarkar, A. (2010). Stigma Experienced by Parents of Adults with Intellectual Disabilities [Thesis Master Degree, Queen’s University Canada]. https://qspace.library.queensu.ca/bitstream/handle/1974/5681/Sarkar_Ahana_201005_MSc.pdf?sequence=1
Shen, L. (2016). Stigma Against Mental Illness and Cerebral Palsy in China [Doctoral dissertation, Harvard T.H. Chan School of Public Health]. https://dash.harvard.edu/handle/1/27201730
Stafford, M. C., & Scott, R. R. (1986). Stigma, Deviance, and Social Control. Dalam S. C. Ainlay, G. Becker, & L. M. Coleman (Ed.), The Dilemma of Difference: A Multidisciplinary View of Stigma (hlm. 77–91). Springer US. https://doi.org/10.1007/978-1-4684-7568-5_5
Surlis, S., & Hyde, A. (2001). HIV-Positive Patients’ Experiences of Stigma During Hospitalization. Journal of the Association of Nurses in AIDS care, 12(6), 68–77. https://doi.org/10.1016/S1055-3290(06)60185-4
Taira, N. (2017). Challenging Stigma and Discrimination: The Experience of Mental Health Service Users in Japan [Master thesis]. The School of Sociology and Social Policy; University of Leeds.
Utami, M. S. (2012). Religiusitas, Koping Religius, dan Kesejahteraan Subjektif. Jurnal Psikologi, 39(1), 46–66. https://doi.org/10.22146/jpsi.6966
Vitorino, L. M., Low, G., & Vianna, L. A. C. (2016). Linking Spiritual and Religious Coping with the Quality of Life of Community-Dwelling Older Adults and Nursing Home Residents. Gerontology and geriatric medicine, 2, 2333721416658140. https://doi.org/10.1177/2333721416658140
Wnoroski, A. K. (2008). Uncovering the Stigma in Parents of Children with Autism [Master thesis]. Miami University.
Yampolsky, M., Wittich, W., Webb, G., & Overbury, O. (2008). The Role of Spirituality in Coping with Visual Impairment. Journal of visual impairment & blindness, 102(1), 28–39. https://doi.org/10.1177/0145482X0810200104
Yang, L. H., Chen, F. pei, Sia, K. J., Lam, J., Lam, K., Ngo, H., Lee, S., Kleinman, A., & Good, B. (2014). “What matters most:” A Cultural Mechanism Moderating Structural Vulnerability and Moral Experience of Mental Illness Stigma. Ethics in Science and Medicine, 103, 84–93. https://doi.org/10.1016/j.socscimed.2013.09.009